Happy and Healthy New Year

A very Happy and Healthy New Year to all my friends who are Jewish. Tonight begins our New Year.

I wish for a better year, a healthier year, a year for new doors opening on Adopt A Caregiver.

Tomorrow we are seeing our lawyer and setting up a Non Profit, and hopefully the U.S. Patent office will contact me soon on my trade mark for Adopt A Caregiver.

Tomorrow afternoon, I am getting my blog and website updated. Don’t know if you will be able to notice the difference but I am sure I will. Can’t wait.

A terrible Fibromyalgia and Chronic Fatigue week for me. Haven’t had it this bad in years. Maybe a lot of stress and the humidity is catching up with me.

Oh well, what do I say, tomorrow is a new day. And the sun will shine here in Las Vegas. I love the sunlight, but am getting tired of the 90 plus degrees. Can’t wait for some cooler weather.

Everyone was gracious yesterday during my talk, everyone listened and I think one by one they will say something about Adopt A Caregiver. I hope.

Thursday I am giving another talk. Will tell you about that on Friday.

I’ve got a lot of catching up to do.

This was a mish mosh of bits and pieces of my life.

Keep love and kisses in your life. Helene

Thank you Lisa for your kind words.

Thank You

Thank you to Gloria and all the men and women who came this afternoon to hear me speak about Behind The Mask, and Adopt A Caregiver. I’m so sorry that some of you could not hear me It has been a bad Fibromyalgia day, and my voice wasn’t strong eough to carry throughout the room. I appreciate your listening, and your comments, and again thank you.

Thank you to Linda Abbit for including me in your blog, www.tenderlovingeldercare. com  I will call you when we come to California. Promise.

And thank you to Elizabeth who also included me in her blog. www.genbetween.com

And coming up this week, a huge thank you to Gary and Steve who will help me straighten out my website and blog. Hopefully, it will make it easier for all of you to comment, and I would love your comments.

I am speaking to Senior Resources on Thursday.

I’d like to thank the U.S. Patent office, but I have not yet heard from them. I am trying to trademark Adopt A Caregiver. We are also talking about setting up a Non Profit this week.

Yes, I’m a busy lady. But as the doors are being opened, I am going through them., Sometimes head first, and sometimes upside down.

I feel blessed and grateful that these doors are opening, one by one.

And I feel blessed and grateful that word of mouth, which I say, is so potent, is starting to work. One by one, we will help all the caregivers. Starting in our own community.

In our community, that is how is should be, one community at a time. Every community has caregivers. Find them, befriend them. They need someone. Let it be you.

Keep love and kisses in your life. Helene

God's Roller Coaster

In 1992, our art collection of kissing couples was shown on Lifestyles of the Rich and Famous.

In 1993 my husband was suddenly diagnosed with Alzheimer’s Disease, and the Alzheimer’s Association and UCI ( Ujniversity of California, Irvine) insisted we keep it a secret. So I started a secret journal and poured myself on to the pages. Seven years later, God’s plans changed and Howard’s diagnosis was changed. No more Alzheimer’s. When I showed Howard my journal, he insisted I publish it, and I did as Behind The Mask.

This is what being on God’s roller coaster is like.

I wrote, “What is normal? Is it sitting around the dining room table after Thanksgiving and sending the kids out to play after we ate, and then we discussed doctor assisted suicide and what would happen if there wasn’t a doctor assisted suicide program allowed in my state.”

What is normal? Normal is our lives today. Normal is opening your eyes and seeing all the things we have to be grateful for. For the love we have for each other and our family, our friends, our laughter, and even our tears. Normal is living with hope, gratitude and love. Normal is being us.

After my book was published a light-bulb went off in my head. This book’s purpose was to help caregivers. By reading it everyone would know the emotions all the new caregivers are going through. I know I can’t wipe away all their tears, but I can help them get through the day.

Adopt A Caregiver. I am devoting the rest of my life to make this happen. One by one by one, word of mouth is potent. We can all help. We all know a caregiver. All it takes is an email. Be a friend, and really listen.

Determination, passion, compassion is what I have. I need everyone’s help to get my words out to the community. My community, your community.

I guess I am still on God’s Roller Coaster.  Thank God.

Keep love and kisses in your life. Helene

A Tough Question

Sometimes someone asks me a question and it makes me think. What should I answer, what is the right answer I ask myself.

Well today someone made me think.

The question was, “Doesn’t it bother you to hear all these sad stories about caregivers?”

The answer jumped right out of my mouth as I answered, “No, it just makes me want ‘Adopt A Caregiver’ even more. I want to help more. I never thought about it, the words just came out.

As I think about that now, I think that answer was the correct one. It takes a long time for a person to feel safe enough to talk about their situation, and when they do, I pay attention. It’s that important to me.

I feel for every caregiver and I do want to wipe away some of their tears.One by one, word of mouth, we can do it.

November is National Caregivers Month. Lets start now. Find out who in your area is a caregiver. Find out how to get in touch with them. Tell them you understand what they are going through, because a friend of yours shared all her emotions about how it feels to be a caregiver in her book, Behind The Mask. Tell them you want to adopt them, and explain how it works. Be real, be honest, be a friend. A true friend never judges, always listens to the best of his/her ability.

Sometimes in one email you know you have made a friend. I’ve done that this week, and it feels wonderful.

My friend Jeanne and I had lunch today, something we have done since 1993, when Howard was first diagnosed. She was the only person I told in the beginning. I felt safe with her knowing the truth. We met in California, and then we both moved to Las Vegas, and we still try to meet once a week. She agreed with me that a childrens story about Alzheimer’s Disease would be something worthwhile. I’m going to try and find the time to do a story like that. Grandparents are living in the parents home, which makes the child a caregiver also. He/she needs explantions about what is happening to Granny.

I think I have enough to do, and then I always come up with more. I guess that is just the way I am. And I am just me.

Keep love and kisses in your life Helene

November is National Caregivers Month

November is National Caregivers Month. We can start early. Together we can make a difference.

Adopt A Caregiver, be a friend. Listen to the caregivers who are lonely, depressed, and wondering what is going to happen next in their lives. Evey day is a struggle. Emotions can run high, and there is no outlet.

We can help. A friend is somene who does not judge, who listens, who is there. A simple hello does wonders for morale. Especially now that winter is on it’s way.

My brochures came today, and they are beautiful. Thank you Allison. I’m giving them out, trying to reach as many people as possible. Spreading the word, one person at a time. The seeds are taking root.

Comments about Behind the Mask, my secret journal, come in regularly. I started my new book, Adopt A Caregiver, and I’m using as many stories and comments as I can. They are so important. No one understands until they stand in the caregivers shoes.

We must lift the stigma from Alzheimer’s Disease. We must remember that it is the disease talking, not the person. One of the problems is they look the same, dress the same, walk the same, but they are not the same. Sometimes they don’t even make sense. And asking the same questions every few minutes, well, we would all lose patience. It takes courage and compassion to be a caregiver. Lets try to help them, those who are so busy caring for others, they have no time for themselves.

Let do it before November’s National Caregivers Month.

Keep love and kisses in your life. Helene

Reaching Out to the Community

November is National Caregivers Month. Lets start now and reach out to our community.

Adopt A Caregiver. Alzheimer’s Disease is not contagious, and the other victim is the caregiver. The one left alone at the end of the day. The days are getting darker earlier now, think about the caregiver. Be a friend, write an email, send a card, encourage them to talk, and let out their emotions. If they don’t want to talk to you, maybe they would write in a journal. I wrote in a secret journal when I was a caregiver, and believe me it saved my sanity. Because I had to keep the diagnosis a secret I poured my heart out on those pages. I published them as Behind The Mask. I am so glad I was able to take off my mask.The worry never stops, the thoughts never stop, thank God I had my journal.

I am thinking of writing a children’s book about being a caregiver. After all the child is helping and they surely don’t understand what’s going on. They are asking questions, or not asking questions. I think a book like this is necessary, don’t you? I value your opinion, let me know what you think.

I hope you never have to stand in the caregivers shoes. Adopt a Caregiver now, plant the seed and watch it grow. I’m hoping that every community will want to talk about my program, I’m hopng that every community will have an Adopt A Caregiver program. It is my new journey, please help make this vision a reality.

Keep love and kisses in your life. Helene

Courage, Community, Compassion

Today is World Alzheimer’s Day, and I was thinking about courage. There are all kinds of courage, but I was thinking about the time we, my sister and I, had to put our parents into a nursing home. It took the courage of our convictions to do it. My sister didn’t agree at first, and that created some guilt on my part. But she soon realized that I was right. I was also twelve years older than she was.

Courage was cleaning out the apartment. The personal belongings of a parent; papers and things from their desk, going through the closets and the closed drawers. It was heartbreaking to see how little was left inside those closed doors and drawers.

Where were the letters and pictures? Why did Mom throw all of them out? To make it easier for us? To make it easier on the grandchildren who loved them? Dealing with the grandkids took a quiet courage.

And then there was the courage to pull the plug. My father had already died, and my mother had no lungs left. She was on life support, couldn’t talk, we couldn’t get close enough to give her a hug, all we could do was hold her hand. It seemed to me her eyes were pleading for us to let her go. We talked to the lung doctor and there was nothing they were able to do.

Yet, when all is said and done, we know we did the right thing, and yes, it took courage.

When my husband was suddenly diagnosed with Alzheimer’s Disease and we had to keep this news a secret because he still worked and they insisted we not say anything. So we didn’t say anything.

It took all my courage tp write my guts out on paper in that secret journal. Who could I talk to except the paper? Seven years later the diagnosis was changed, and I showed my husband that secret journal. He said I had to publish it. It took courage for me to do it. But do it I did, and the rewards are now coming in.

My book, Behind The Mask, shows the courage and also the compassion for the new caregiver. My thoughts are their thoughts. I am so glad I took off my Mask. The comments are so heartwrenching and heartwarming at the same time.

And now since the book came out, I decided that I want everyone to adopt a caregiver. Older people have courage, dreams and wisdom.

I have a vision for the future. Committment to the community we live in. Find a caregiver, give her your support, write her an email, ask how she is doing, and mean it. Tell her/him you can listen, you have compassion and the courage to do this.

Now my courage comes from within myself. I know where I’m going and with everyone’s help my Adopt A Caregiver will be everywhere There are already many people helping me, planting the seeds.

Remember there is nothing to join, no dues to pay, no committment to anyone but yourself.

Support the caregiver, you too have courage, compassion and community within yourself.

Keep love and kisses in your life. Helene

Go Purple Sunday

World Alzheimer’s Day, and they said to ‘go purple’. No problem for me, it’s my favorite color. In fact I’m wearing it right now.I hope this day will mean everything they want it to be, for them ,and for Alzheimer’s Disease. This is so important, we must not lose sight of these achievements.

Being aware is so important. I never knew that until I was mugged in New York. I thought we were aware, but someone came up behind us and hit me across the knees. I went down like a bolt of lightening, and my husband chased the man. Lucky me, I’m short, so he never got to my knees, just my thighs. But it has made me aware of anyone and of everything around me.

Being aware is a good thing. Makes you think, makes you care. Makes me want to Adopt A Caregiver.

I went to a fundraiser this morning for the Henderson Hospice, a dream turned into reality.

Hopefully, my Adopt A Caregiver will also be a vision turned into a reality.

Today someone else picked up my blog and wrote about my Adopt A Caregiver program.   So now there are several sites out there who have mentioned my Adopt A Caregiver.

www.tenderlovingeldercare.com

www.genbetween.com/adopt a caregiver.

Thank you all for your good wishes, and for spreading the word and planting the seeds. I am watching them spread. It’s a good feeling.

Another good feeling is my granddaughter said I would have my brochures by Wednesday. Thank you Allison for all your hard work; on the book cover, the business cards, and the bookmarks. I love you for who you are. And even that you wrote to Oprah about me and Adopt A Caregiver.

Keep love and kisses in your life. Helene

A Day Off

I’m taking the day off tomorrow. Just going to the knitting club for a little while in the morning. I need some catch up time. I’m way behind in answering my emails, that almost never happens to me. I have started making notes for my next book, and I need to type them up on the computer.

I want to relax. That means not doing very much. Maybe sitting in my black chair and thinking about my new book, how I will put those stories together. It too will be a memoir of the days following publishing my book, Behind The Mask, and what happened to make Adopt A Caregiver into my new book.

When someone in my community asks, “How do I start a memoir?”

I have answered this way: One way is to start with a traumatic event in your life and just let those words fly out of your head onto the paper.

Another way is to use ten year increments.  So that means you start with your early life, 1-10. Then you go on to your teen years, 11-20 and so on. You do not have to write in order. You can write an anecdote or scene and then write about something that happened ten years later. When you have finished, then you can go back to connect all the stories.

The important thing is to get it down on paper. don’t worry about punctuation, spelling, just let those words jump outside your head.

It’s also helpful and healthful to do this. Julia Cameron says “to write is to right.”

Behind The Mask helped me through a very rough seven years, worrying about when the Alzheimer’s my husband was diagnosed with would begin in earnest. There were many days I thought, ‘This is it, it’s today.” When his diagnosis was changed, and I showed him my secret journal, he said, “You need to publish this.”

After publication, I realized this book was every new caregivers story. And I wanted to help the caregivers and that’s how Adopt A Caregiver was born.

It takes both passion and dedication every day to do something about it. Word of mouth is spreading, it is working. Doors are opening, people are coming into my life to help me. I feel blessed and I vow to spend the rest of my life helping caregivers. Maybe together we can wipe away some of their tears.

One day this will be a non profit organization, one day everyone will know what Adopt A Caregiver is. And one day when you type into Google search, the words Adopt A Caregiver, they will come up first.

Thank you all for your support and help and for opening doors for me that I never  thought possible.

You are in my blessings every night.

Keep love and kisses in your life. Helene

Remember

Remember the Alzheimer’s stamp is coming out soon. And remember to wear purple on Sunday, the 21st. I know I will be wearing purple and holding my book, Behind The Mask, with it’s purple color.

Remember that you are blessed, and each day is a gift.

We lose people we love, but we remember them with our love and smiles.

Remember to smile when you are feeling lousy as I am today with Fibromyalgia and Chronic Fatigue. A bad day, but tomorrow is another day.

Remember to take care of yourself. And please think about my Adopt A Caregiver program.

This is my new journey, and it should start within every community. We all have friends, or neighbors who are caregivers. Please help them, remember them with kindness. Email them, tell them you care.

Keep love and kisses in your life. Helene