Sleep

Blessed sleep, something I never, or seldom get. Fibromyalgia is the culprit, or part of it, doesn’t matter, the bottom line is my sleep is terrible. Very seldom do I get a full nights sleep. Some nights I get no sleep at all, and all this with the help of a sleeping pill.

I’ve gotten used to it, I don’t like it, my husband doesn’t like it, but hey, it is what it is. I’m grateful when I get 4-6 hours sleep, and truthfully, I have to nap most days. It’s funny, on the days I do nap, I sleep better at night. Most of you are thinking, don’t nap, you’ll sleep better at night. That doesn’t work for me. Believe me, I’ve tried it.

But I’m grateful when I sleep, and when I can’t I accept it. I forgive myself for not doing everything I think I should be doing in a day. I forgive myself when I’m not up to par.

Imagine how the caregiver feels. it’s so hard to stand in someone else’s shoes. Another reason I published my secret journal, Behind The Mask. Being a  caregiver is hard enough, it’s even harder when you have to keep it a secret as I did.

I hope my story inspires others to Adopt A Caregiver. Every caregiver needs a friend, someone who won’t judge them, lets them vent, talk, get it out, someone who encourages the caregiver to forgive themselves, to journal, to listen to music and to just be there.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Compassion

I used to think I was a compassionate person. I looked up to older people, held the door open for them, felt for the underpriviledged, those less fortunate than myself, and then I became a caregiver.

I was a caregiver for seven long hard years when my husband was suddenly diagnosed with Alzheimer’s Disease and we were advised to keep the diagnosis a secret. He was a highly functioning individual, still working, and we couldn’t take the chance of his losing his living. Not yet.

I started a secret journal, which I later published as Behind The Mask. This journal showed my emotions, my thoughts, my fears and everything I was going through and I wondered about all caregivers. Did they feel the same way I did? Were they worried about their spouses, their parents, their future, their alone time? Did they worry about being a burden to their children? Did anyone wonder about the caregiver? Did anyone care?

Compassion, now I know all about it.

I started Adopt A Caregiver, which means that in your own community, find a caregiver. Send an email, offer to be their friend. Do not abandon the caregiver, have compassion for what they are going through. Help them, support them, encourage them to help themselves. Do not judge, for you have not stood in their shoes.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Writing Meeting

I went to a writing meet-up last night. I’m always impressed by the quality of the writing, and the imagination of writers. I can’t wait to find 2 or 3 people or even 1 person who lives near me and will brainstorm and mentor me as I write a novel.

The best part is of course the feedback, which was wonderful. They said to change the name of one character, too much like the other name, and to make one person more humerous. My book is filled with emotion, and adding a little humor is a great suggestion.

The other thing I relearned, is to keep going, don’t go back and rework chapter one forever and ever. Just write, keep writing until the end, then go back and use post it notes, highlighters, whatever works for you and higlight whatever you want. Could be the first word of each sentence, description, dialog, setting, looking for vivid verbs. I do keep a notebook of words I like and I use that notebook a lot.

I also have a Bits & Pieces notebook and I have quotes, small scenes, descriptions, words, advice, whatever I want to remember and I keep them in a folder. I add pictures, names of books I like anything to jog your memory or jumpstart your writing.

First lines jumpstart my writing, and I have about 550 of them finished. I love doing them.

Saw my doctor today. I have the lowest Vitamin D level he has seen, so I’m starting to take Vitamin D. I hope with all my heart it help with the fatigue. I want to do so much more in one day, but I can’t seem to keep up.

Keep love and kisses in your life. Helene

Give the gift that lasts forever and costs nothing. Adopt A Caregiver in your community.

Silly Stress

Yesterday I talked about stress. Today, I want to mention what I call silly stress. The kind we bring on ourselves for silly reasons.

For instance, for the past month or so I’ve been stessing over my computer. Because of the move to California and getting settled, etc., I haven’t been commenting on other blogs or used my Facebook Account. The longer I avoided it, the more stressed I became. Silly stress.

Then I met someone who said her son could help. So I called him, eventually. (silly stress) and when he came over the other day, it was like okay, I understand this. Why did I consume myself with silly stress over this.

Because the more we put off what we don’t want to know or learn, the worse it is. Face the fear, if fear is what it is, and get going, do something about it. It’s not so terrible when you break it down.

It’s true peole learn in different ways, for me, someone has to show me how. Then it’s easier to understand. I can’t read about how to do it, that doesn’t work for me.

Know youself, and so something worthwhile. Let go of the silly stress in your life There is enough stress without putting yourself through silly things.

That’s my thought for today.

Keep love and kisses in your life. Helene

Give the gift that lasts for ever and costs nothing. Adopt A Caregiver and tell them your friend Helene sent you.

Visit www.adoptacaregiver.org

The Lessons Of Life

Stress! Caregiver stress.

Taking care of yourself, meditate, even for five minutes. Listen to the music you love, journal, draw, play with colored crayons, Silly Putty, bang the drum or the pillow, putter in the dirt, buy yourself a flower pot, or a plant, make a collage of pictures as you would like your life to be. save quotes and read one every day, do anything you can for 5-15 minutes a day to restore yourself. If you can’t, then at night before you go to bed, think about a way to make tomorrow the day you can find a few minutes to get away. (even if it’s just in your own mind) Think about happy thought and places you’ve loved, people who have come into your life and made a difference.

See how easy it could be? Yeah, in your dreams. I wish for all caregivers the gift of the above. I hope someone comes into your life to give you some respite.

Someone in your own community to become your friend, to email you, to encourage you, to help take away your stress. That is my wish and yes, even my goal.

Adopt A Caregiver. Give the gift that lasts forever and costs nothing. See www.adoptacaregiver.org and do something for someone who needs you to be that friend. You can tell them that your friend Helene sent you.

Keep love and kisses in your life. Helene

To My Good Friends, The Caregivers

I hope you will visit my new website, www.adoptacaregiver.org and I hope you will comments on my blog and tell me your favorite sites to visit. I’m always curious as to what you are thinking, if you have time to browse on the internet, if you have someone in your life to lean on in these hard times for you.

People call, they do, and they ask, “How’s the patient?” Do the ask how you are? You, the caregiver, is just as affected as the patient. I hope you get some consideration from your doctor and your family and friends.

I’m trying to get everyone to  Adopt A Caregiver. I know how important it is to have a friend, someone who doesn’t judge, just listens.

So in your community people, reach out and Adopt A Caregiver. Dont’t know how a caregiver feels, read my book, my secret journal, that no one saw until I published it. Behind The Mask by Helene Moore. It’s available on my website, signed and mailed immediately.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver, and tell them your friend Helene Moore sent you.

Keep love and kisses in your life. Helene

The Value Of Life

All the cliches are true. Life is precious. Life is short. Life is not fair. Life is what you make it.

Let’s talk about it. Life is precious: it is, each moment has a memory, whether it’s a happy one or sad one, or angry one, it is a moment in time. Moments are for memory, for writing, for Memoir. Take a slice of a day, shape it into a memory, and keep it close to your heart.

Life is short: damn right it is. One second can change your life. An accident, a doctor’s report, anything that upsets the balance of your life. Don’t waste time on what could be, or should be, just take what happens and sharpen your attitude. You attitude will get you through the toughest of times. I know, I’ve been there. I wrote Behind The Mask, using moments, documenting feelings and emotions, yet my husband’s sense of humor and my attitude got me through those awful seven years.

Life is not fair. Who ever said it was. Every day is a challenge we have to meet. Sometimes it is like being in a ring, only the ten rounds are never over. You get knocked down every which way. But you have to keep going.

Because life is what you make it. Attitude, perserverance, and love and kisses can help you through anything. Writing about your life is a carthartic process, it heals.

Be thankful for every moment in time. Beef up your attitude. Take good care of yoursef. Be yourself. Love who you are, and be the best you can be.

Keep a grateful list and list everything you are grateful for. See if you can get one hundred things written down on paper. Update the list and keep updating it until you have 200 things you are grateful for.

Keep love and kisses in your life. Helene Moore

Dear Caregiver

I hope you already know about my book, Behind The Mask, and that it prompted me to start an Adopt A Caregiver journey. I propose that neighbors in the community find out if there is a caregiver who lives near them, and that they contact his/her with an email. To be a friend, to listen, to let you, the caregiver, vent and to keep in touch with you, no matter what else is going on in your life.

Is there anything you, the caregiver, would like to add. What would you advise me to tell my blogging audience? Help me to help you.

Visit my www.adoptacaregiver.org website, read it, and contact me with advice on how to help you.

Keep love and kisses in your life. Helene Moore

Writing In My Head

I seem to be writing in my head, but not writing it down. It seems that during the daytime, I’m either too tired, or we are doing errands, or right now, in the midst of seeing new doctors. That’s what happens when you move.

I was looking through some old writing, and boy, does it still apply to today. For instance in 2000, about six months after moving into our new house in Sun City Anthem, I wrote something called:

“Projects:  and part of it went this way:

Man have I got lots of projects in my head I want to do in the next few weeks. First and foremost, my usual project, clearing the clutter off my desk.

It’s in it’s usual disarray. Recipes competing with email and letters to answer, www. web sites to look at. New restaurants to try. There is a glass of water, the telephone, pads of empty paper sit alongsdie the paperclips and rubber bands.

Then  there is the bookshelves. My friend Jeanne reminded me of the word I was looking for. CATEGORY. I should call it scattergories.  Fiction, Non Fiction, novels, books I haven’t read yet, cookbooks, art books, writing books, Fibromyalgia books and health books, self help book and the classics to reread and the list goes on and on.

The manuscript, I talk bout it, now I have to work on it. I have to go to Office Max, and get some notebooks for all my writing projects. I could go on and on, but I’ll stop here because this will take weeks and weeks to do.”

by Helene Moore

Everything changes, nothing changes.

But, this time, something did change. I started my Adopt A Caregiver program. You can see it at

www.adoptacaregiver.com

check it out. It’s my new journey, for the rest of my life, as is writing.

Keep love and kisses in your life. Helene

Fibromyalgia And Chronic Fatigue

Most people have no clue what it’s like to have Fibromyalgia and Chronic Fatigue. Went to the doctor today for my annual physical and realized I hurt all over. Any where he touched, it hurt. I am definitely in a flare up mode right now, brought on mostly by myself. The move, bending, packing, unpacking, putting thiings away, lifting heavy boxes of clothes, I thought by now it would be better. Instead it has gotten worse.

Having Fibromyalgia is like walking around all day with an all over ache, sometimes better, sometimes worse. On a bad day, it’s all I can do to get out of bed, but I do. My attitude is, it’s there, it’s always going to be there, so do what you have to do.

When I can’t do that, is when I have Chronic Fatigue. I am so tired, and brain fogged I can’t think straight, can’t concentrate, and I lose the day, or week, or month. Either you can’t sleep, or even when you do, you wake up exhausted and there isn’t a darn thing you can do about it.

I have been living this way for so many years that it’s part of me. It just is. I accept that, and I try to keep my spirits up. If I can’t do anything, I read, or take a nap, if I can. When I feel better I can get more done in one hour than I can in days. That’s just the way it is.

I’m thankful I am here. I am grateful for everything I have and can do. I’m grateful that my husband understands and gives me time and space and love.

I wish the medical profession would pay more attention to Fibromyalgia and find something to help with the pain. It is real, it hurts, it’s debilitating.

Thanks for listening.

Keep love and kisses in your life. Helene Moore