That is the subject of my speaking engagement tomorrow. I have no idea how many people will be attending, if any, but I am prepared to talk. My book, Behind the Mask is every new caregivers story, it just happens that I published it. It is still their story as well as it is mine. The every day up and down emotions are all on display. Since we had to keep our diagnosis a secret, I started a journal on my computerthat Howard could not see.
After they changed the diagnosis, seven long years later, I showed him my journal. It took me a few years to gather up my courage to do that. But I realized how lucky I was that he would be able to read it and know what I was talking about. That his mind was sharp. He loved it, said it was me and that I should publish this book.
After I held Behind The Mask iin my hands, I realized this book had a purpose.
And that is my adopt a caregiver program. Everywhere you go, at dinner, clubs, social events, doctor’s offices, community, wherever you are, there are caregivers. These people need a friend, someone to talk to. An email works, gives them something to look forward to.
Caregivers don’t want to be a burden, they don’t want to talk about it. They feel that no one understand what they are going through. Behind The Mask takes you on their journey. You can stand in their shoes and know how they feel, their loss, their anger, their love and the fact that the are willing to do this 24/7.
It is my understanding that support groups for caregivers is dwindling. I hope not. It is so important for caregivers to have an outlet. I suggest each and every caregiver buy a journal and a bright colored pen and start writing out their feelings. It does help. Sometimes I think it saved my life, when I didn’t want to burden my children with my thoughts.
Come back tomorrow, and I will tell you the outcome of my talk.
Keep love and kisses in your life. Helene