This is something I wrote during the time my husband was diagnosed with Alzheimer’s Disease.
“My emotions are on a crazy roller coaster and I’m spinning round and round. My vibes are whirling questions at me that I don’t want to answer. Climbing up to the top of the hill, a winding long road round and round the mountain.
Getting to the top takes courage and humor, vulnerability slows me down, but I keep climbing up and around, stepping into holes and on stones, slowing me down but I am determined to persevere. One step up and falling down two, doesn’t matter, not important, just keep going, keep moving, keep breathing, only winners get to the top.
What is waiting for me at the top? I’ll never know unless I keep putting one foot in front of the other. And after I finally make it to the top, then I can tell you (others) about the journey.”
That was written years ago. My husband’s diagnosis was changed after seven years. I showed him my secret journal and later published it as Behind The Mask. It shows every emotion a caregiver goes through.
Now I’m on another journey. Adopt A Caregiver. I want caregivers to have support, friends to talk to. Journals to vent into. I want people to remember to ask not only how is the patient, but “How are you!”
Caregivers can feel trapped, no place to turn to. Help them out, support them, give something back. It costs nothing to send an email. Every community has caregivers. Find one and adopt a caregiver. This is my journey.
November is National Caregivers’ Month.
Keep love and kisses in your life. Helene