Alzheimer’s Disease AGAIN

Can you believe this one? My husband was diagnosed with Alzheimer’s Disease 20 years ago. Obviously whatever was going on with him then never got much worse. But we had to keep it a secret because he was still working. As the years went by, and it was obvious it wasn’t A.D. the doctors would not take him off the A. D. medication. So from 1993 to 2000 he suffered from terrible stomach pain, that came and went for years.

Transfer to today, August 16th, 2013. We learned two days ago, by a second opinion, that this time he did have early, mild Alzheimer’s Disease. Even the Neurologist smiled and said, “Funky case, never saw anything like this one before.”

Anyone out there with this same experience?

The last time I kept everything inside, and published my journal from those years, Behind The Mask…..I thought it was so good to rip off that Mask.

Now that I can talk about it, I haven’t shed a tear, just feel overwhelmed. We even went out and bought cemetary plots……how’s that for jumping the gun?

It’s hard enough to hear this once, but to get slammed in the stomach twice..I think you get the picture.

Right now life is crazy. Making plans, doing things in fast motion, trying to slow down, but doing more than ever. At 82 I find myself doing an online writing course, which I am loving, but it takes up a lot of time.

Thank goodness for a close and loving family, almost all of whom live within a 30 minute car ride, some are very close, like a half mile and one mile… We are blessed and thankful for that. We do have a built in support group.

Every day I try to find things to be grateful for, and to find a little bit of beauty in my life. I meditate also, which helps and I read and read, and read. My escape from the reality of the world.

Next time I’ll talk about my writing, my writing group, and some books that I highly recommend.

Keep love and kisses in your life. And remember to Adopt A Caregiver. Give the gift that keeps on giving, without costing you anything.

 

Adopt A Caregiver

Something dear to my heart, so I am repeating it.

Adopt A Caregiver

I would like you to read Behind The Mask, and know what it feels like to be a caregiver. Then I would like you to

Adopt A Caregiver.

Email or phone, develop a personal relationship with someone whose friends have deserted her or him. Let them know they are not alone.

Alzheimer’s Disease is not contagious! The caregiver is also a victim.

Look around your community, there are caregivers there.

It’s not difficult to send someone an email once a week or so, and I guarantee they would be so grateful to receive this mail from someone who cares enough to sit down and write.

Give the gift that keeps on giving and costs nothing.

Pay it forward.

Next post will be back to Reflections of Me: The night the market burned down.

Until next time, keep love and kisses in your life. Helene

Thank You

I was thinking about the seven weeks I was caught up in Chronic Fatigue enough to almost be non-functioning. Thank goodness I was able to take care of myself, but I was wondering what happens if a caregiver gets sick???? Who takes care of them? No one wants to think about that, but someone needs to. They have to reach out for help. So see that you are someone they can count on. Adopt A Caregiver.

Adopt A Caregiver, and give the gift that lasts forever and costs nothing! They need your help. Tell them your friend Helene sent you. Bless you all.

Keep love and kisses in your life. Helene

Emotions

This is something I wrote during the time my husband was diagnosed with Alzheimer’s Disease.

“My emotions are on a crazy roller coaster and I’m spinning round and round. My vibes are whirling questions at me that I don’t want to answer. Climbing up to the top of the hill, a winding long road round and round the mountain.

Getting to the top takes courage and humor, vulnerability slows me down, but I keep climbing up and around, stepping into holes and on stones, slowing me down but I am determined to persevere.   One step up and falling down two, doesn’t matter, not important, just keep going, keep moving, keep breathing, only winners get to the top.

What is waiting for me at the top? I’ll never know unless I keep putting one foot in front of the other. And after I finally make it to the top, then I can tell you (others) about the journey.”

That was written years ago. My husband’s diagnosis was changed after seven years. I showed him my secret journal and later published it as Behind The Mask. It shows every emotion a caregiver goes through.

Now I’m on another journey. Adopt A Caregiver. I want caregivers to have support, friends to talk to. Journals to vent into. I want people to remember to ask not only how is the patient, but “How are you!”

Caregivers can feel trapped, no place to turn to. Help them out, support them, give something back. It costs nothing to send an email. Every community has caregivers. Find one and adopt a caregiver. This is my journey.

November is National Caregivers’ Month.

Keep love and kisses in your life. Helene