Time Flies

It’s been such a long time since I have written. So let’s see what has been happening. First of all, I’m good. I attribute a lot of that to my Meditating every day. When I don’t do it, I miss it.

Also keeping up better with everyday paper work, except for my blog. What does that say about me? I wonder?

My writing group is still going great. We did free writing today, and it went so well, we are going to do it every day for the month of April. Will be very interesting to see what pops up.

Howard is doing so well that he failed participating in the new drug trial for Alzheimer’s Disease for mild to moderate dementia.. He failed because he is
‘too highly functional’ isn’t that wonderful news. It was for us. Especially since I wasn’t so happy with some of the possible side effects.

I also participate in computer classes, Meditation classes and Mah Jongg. At almost 83, that is enough.

For those of you who have Sjogren’s Disease, please note that you must take care of your dry eyes. My eye doctor informed me today that when my eyelid closes on my left eye, it is scratching my cornea. I really didn’t want to hear that. I have to go back in a month. In the meantime I need to use my Bio Tears 4 times a day (4 pills) and use my Restasis every day. Plus eye drops. Often! Any of you have any more ideas for me? Feel free to comment. Would love to hear from you.

Keep love and kisses in your life.
Remember that Alzheimer’s Disease is not contagious!

Adopt A Caregiver

I always talk about Adopt A Caregiver. I think it’s a wonderful idea, and I wish that everyone would do it. At least try it.

It’s so simple, I am sure all of you know someone in your own community that is a caregiver. Doesn’t matter what kind of care-giving the person does. Cancer, Alzheimer’s Disease, anything.

All you have to do is email this person, tell them you are trying to understand what they are going through. Since you cannot stand in their shoes, perhaps you can get that person to talk to you, to vent, to help you ‘see’ what they see. Just listen, do not  judge just be there as a friend, an understanding friend.

Twenty years ago when I was a caregiver, I wrote something that I never put into my book, Behind The Mask. I though it was too harsh. It went something like this:

Where were you when I needed  you? When I was crying my eyes out alone and scared. You all called and asked how my husband was doing, no one asked me how I was doing.

I’d like to think all that has changed, that people are more tuned in, and are more aware of the needs of caregivers.

Now that my husband is diagnosed again, it starts all over again for me.

I’d like to think we are better prepared this time around.
The one thing I do remember, and know to be true. I will have to live in his reality, when the time comes.

Please go out and Adopt A Caregiver.  Give the gift that lasts forever, and costs nothing.

Keep love and kisses in your life.