Happy 2014

Wishing friends and family a very Happy and Healthy New Year.
Have any of you made resolutions?
Not me, not anymore. I always used to and then realized I did the same ones every year. So this year I decided to do something different.
I would do three things every day, and check them off as I did them.

What are those three things?
1. write
2. meditate
3. walk

Looks pretty simple, doesn’t it? Well, I aim to do just that, keep it simple and keep doing it every day.
I might check in here and let you know how I’m doing.

What are you doing? Have you made a special commitment? Would you mind sharing?

I love my time by myself, I love my time with Howard and my family, especially the Inner Circle.
My husband Howard is doing great, considering his diagnosis, again, of Alzheimer’s Disease. Can you image that, twice in twenty years.

One day at a time, that’s our motto, with as little stress as possible.
Do you know what else I did this New Year? I have cut down the number of things I’ve been doing. Hopefully, that will help me attain my three thing goal for everyday.

At our age, the doctor appointments are atrocious, but again, one day at a time.
I’d love to hear from you.

In the meantime, keep love and kisses in your life, and remember no one can take away your memories.

A Thankful List

I know it’s not Thanksgiving yet, but I have been thinking of all the people in my life who have helped me get to this wonderful, happy place in my life.

Yes, my husband was diagnosed with Alzheimer’s Disease, but he is still highly functional and helps me in so many ways. I owe him my self esteem, my laughter, my ability to cope. Ours is a 61 year love affair that is still going strong.

My writing life, is finally a reality, because I have these helpful people in my life.
My writing group, my little mini cartel people, even my husband who encourages me to write on my blog.

I’m so grateful for all those people in my life, and I probably don’t tell them often enough.

My family who is so supportive and protective of both of us, especially now. So far we are doing fine, but we all know that time will come when we will need to ask for help, and we know they are there waiting in the wings.

I wrote this little poem a long time ago, but it seems to be appropriate for this blog post.

HOLD MY HAND
Hold my hand
I need your help
Guide me to the right path
To people and friends I care about

Hold my hand
I want to know you are with me
Sharing my day, my existence
Hold my hand
I want peace and serenity in my life

Hold my hand
I love feeling your hand in mine.

by
Helene Moore

Reflections Of Me: Me and Alzheimer’s Disease

Hard to take in this diagnosis, even the second time around. The difference is I’m not looking for the next thing to happen.

Instead I focus on each day, making loving memories, savoring my love notes every morning and all the kisses I get every day. It’s getting to be too many to count. I love them.

We’ve made peace with Alzheimer’s Disease. We have made our decisions, and our wishes known to the family and hope it’s a long time in the future for any further actions.

Alzheimer’s Disease is something that makes me sad for Howard. He is smart enough to know when he is losing it.

Last time, twenty years ago, he said his mind was like a sieve, pieces just fell through the openings. Sometimes just a blank page.

Thank goodness we have a great support group, they are very protective of us. Thank you all.

How many of you know someone who has been diagnosed with Alzheimer’s Disease two times??? I wonder, as I think the percentage is higher than I thought.

Meditation and journal writing for me is a tremendous help, as are all my friends and family and writing buddies.

Remember to Adopt A Caregiver. Give the gift that keeps on giving, and costs nothing.

Keep love and kisses in your life.

An Old Post That Is Still Meaningful

 

Today is August 20, and this appeared on my blog several years ago.

The most important things in my life are my family and friends; my passion for writing, reading and knitting; and my self respect.

My book, Behind the Mask, shows the complete range of emotions a new caregiver goes through each day.

Alzheimer’s disease is not contagious, yet the caregivers are usually left alone without the support of friends and neighbors, even family. This disease can last for many years, leaving the caregiver worn out and alone.

Adopt A Caregiver is my unique way of giving back. All you have to do is check your neighborhood, your social clubs, church, synagogue, your doctor’s office, the Alzheimer’s Caregiver’s message boards, and the Mayo Clinic message boards.

Just send an email or phone the person who needs a friend, listen and come back often to let him/her know you care and are thinking of them. Just being there to listen is a huge help.

Adopt a Caregiver. Give something back: Contribute to the well being of people who are so busy caring for others.

The above was on my blog a few years ago.

Now I’m faced with my husband’s new diagnosis, early stage of Alzheimer’s Disease,

We are taking it one day at a time, making memories each day and being grateful of the time we have together and with our family. They are our greatest supporters.

Keep love and kisses in your life.

Alzheimer’s Disease AGAIN

Can you believe this one? My husband was diagnosed with Alzheimer’s Disease 20 years ago. Obviously whatever was going on with him then never got much worse. But we had to keep it a secret because he was still working. As the years went by, and it was obvious it wasn’t A.D. the doctors would not take him off the A. D. medication. So from 1993 to 2000 he suffered from terrible stomach pain, that came and went for years.

Transfer to today, August 16th, 2013. We learned two days ago, by a second opinion, that this time he did have early, mild Alzheimer’s Disease. Even the Neurologist smiled and said, “Funky case, never saw anything like this one before.”

Anyone out there with this same experience?

The last time I kept everything inside, and published my journal from those years, Behind The Mask…..I thought it was so good to rip off that Mask.

Now that I can talk about it, I haven’t shed a tear, just feel overwhelmed. We even went out and bought cemetary plots……how’s that for jumping the gun?

It’s hard enough to hear this once, but to get slammed in the stomach twice..I think you get the picture.

Right now life is crazy. Making plans, doing things in fast motion, trying to slow down, but doing more than ever. At 82 I find myself doing an online writing course, which I am loving, but it takes up a lot of time.

Thank goodness for a close and loving family, almost all of whom live within a 30 minute car ride, some are very close, like a half mile and one mile… We are blessed and thankful for that. We do have a built in support group.

Every day I try to find things to be grateful for, and to find a little bit of beauty in my life. I meditate also, which helps and I read and read, and read. My escape from the reality of the world.

Next time I’ll talk about my writing, my writing group, and some books that I highly recommend.

Keep love and kisses in your life. And remember to Adopt A Caregiver. Give the gift that keeps on giving, without costing you anything.

 

Live In The Real World

We have to live in the real world, don’t we? Yes, usually, most of us do.

But the best piece of advice I ever got  when my husband was diagnosed with Alzheimer’s Disease, was ‘live in his reality’.

Think about it. Asking the same question, pressuring you about a pair of socks might sound ridiculous but not to the patient.

Patience, empathy, and the real world gets in the way, but you have to figure it out for yourself.

My husband is now fine. We were one of the few lucky ones, they reversed the diagnosis seven years later.

I never forgot that advice, and I’m passing it along to you. Think about it and use it when you have to.

Keep love and kisses in your life. Helene

Behind The Mask by Helene Moore

To all those who bought my book a huge thank you. The responses to my book have been awesome. When you stand in someone’s shoes, you get to know their feelings, thoughts and emotions. I never tried to make my story a story, I just wrote it day by day to vent my emotions.The sudden diagnosis of Alzheimer’s Disease was so unexpected, so fast and so devastating.

I always tried to smile for my husband, and the struggle was enormous at times. It strengthened our love affair, and it brought us closer together. We shared our days and cried at night in the darkness of the bedroom, holding each other. We knew it was going to be a tough future, but together we would get through it. My love and kisses and his humor helped get us through the rough days. And there were plenty of them.

But then, the Alzheimer’s diagnosis was changed by the doctor. We were free.

That is how Adopt A Caregiver began.  To help caregivers, to be their friend, when the need one so desperately.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver, and tell them you friend Helene sent you.

Keep love and kisses in your life. Helene

Breakthroughs

We are making remarkable progress and breakthroughs on Alzheimer’s Disease and other diseases as well. But, we are not making enough of a breakthrough for the caregiver!

For the person on call 24/7 who is lonely and feels emotional distress is the caregiver. We are paying attention to the patient, but not the caregiver.

Be a friend, email someone you know who is a caregiver. Tell them you want to support them, be their friend, email them, and keep in touch. Do not judge, for you have not stood in their shoes.

That’s why I published Behind The Mask by Helene Moore to show what it’s like to stand in a caregiver’s shoes, and feel her emotions and share her thoughts.

Support the caregiver. Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Caregivers On My Mind

Caregivers have been on my mind. There have been so many new studies and findings in Alzheimer’s Disease, as seen on many websites. One I like is the Alzheimer’s Daily News. There are so many, too many to list, but for those who just want simple articles can do in depth with the above website.

One of the big shoe companies is making a GPS tracking chip that can be used for Alzheimer’s patients who are wandeing around. The chip makes finding these people quickly a huge factor in preventing accidents.

Other news is more and more people are being diagnosed, many early onset, meaning by the age of 63. I believe in early diagnosis and doing everything you can aggressively to slow down the progress of the disease.

So, what about the caregivers? Some people are caregivers by nature. But what about the others who are thrust into the position sometimes with no warning. These people are overwhelmed, alone, feeling abandoned, scared of the future, not knowing which way to turn. We can help.

What does it take to support a caregiver. Look into your own community and find a caregiver. A community is where you work, live, go to school, play bridge, golf, or attend a social club, church,  or synagogue. It only takes a few minutes to send an email, offer to be his/her friend, let someone introduce you, someone who knows this person. Start a friendship, you remember how to do that, don’t you? Listen, learn, feel. Do not judge.

If you don’t know how it feels to be standing in a caregivers shoes, read Behind The Mask by Helene Moore. This is my secret journal written during the seven years my husband had the diagnosis of Alzheimer’s Disease. We were one of the very rare few who had the diagnosis changed. We are blessed and this is my way of giving back.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene Moore sent you.

Keep love and kisses in your life Helene

Support Caregivers

Do you have any idea how a new caregiver feels? How alone, scared, and the kind of feeling that no one understands, so there isn’t anyone to talk to?

That is why I published my secret journal, Behind The Mask. So ordinary people can read my book and understand the obstacles that confront the new caregiver.

We were the lucky ones, the doctor changed the Alzheimer’s Disease diagnosis seven long hard years later, to Age Associated Memory Impairment. After my book was published, I wanted to give something back, so I started my Adopt A Caregiver journey.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver, and tell them your friend Helene sent you. There is a caregiver in your own community. Find him/her. Send an email, offer to be their friend.

Keep love and kisses in your life. Helene