Give Thanks

Before we know it Thanksgiving will be here, and believe me, there is always a lot to be thankful for.

I’ve been sick for almost seven weeks, not able to function some days, and doing a lot of thinking.

I’m so grateful that I no longer have the threat of Alzheimer’s hanging over my husband’s head. There are so many people affected by disease, by divorce, sickness, death and some just worry over nothing.

The important things in life are free; we are Americans; we are free. Lets keep things in perspective.

Make every day a magical day. No one can take away our memories. Our happiness depends on us.

Support the caregivers. Adopt A Caregiver if you can, tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Journal Writing: A Reflection

The longer I wait to write the more the ‘old news’ is devoid of feeling, like news print that is rubbed out and hard to read. The once powerful emotions are now like words coming out of a printer that is running out of ink, flat and blurred.

So why do I wait? Because I do not want to face myself on the page. Because I am happy each day is not a reminder of what may be coming. I can face today–tomorrow I’m not so sure. I’m always afraid that today’s smiles will turn into tomorrow’s emptiness.

My family is my life-line. The pull me up when I am sinking, and they reel me in when I get too far out. I know I will need them in my life while my life goes where it will, and I have to follow the path to see where I am headed. The uncharted territory is without a map. So it’s one day, one hour at a time.

This was written while I was still a caregiver, before they changed the diagnosis from Alzheimer’s Disease to AAMI (Age Associated Memory Impairment).

It is so important for the caregiver to vent feelings; his/hers doesn’t matter. It’s hard to get the feelings out, but some day you will be glad you did. As you look back on what you wrote, (and please do date everything), you will know what is was to feel deeply. It’s hard for caregivers to balance their lives. Writing in a journal is one of the biggest and best support systems I know. It works. My secret journal became my book, Behind The Mask, which is every new caregivers story.

I want to change the caregivers world. I want to take away the stigma of Alzheimer’s Disease and other dementia’s.  I want my Adopt A Caregiver program to be everywhere. Every community has caregivers, be courageous, be compassionate. Adopt A Caregiver.

Keep love and kisses in your life. Helene

Keep love and kisses in your life. Helene

Adopt A Caregiver Mission Statement

The most important things in my life are my family and friends; my passion for writing, reading and knitting; and my self respect.

My book Behind The Mask is a caregivers secret journey showing the emotions churning through me each new day.

Alzheimer’s Disease is not contagious, yet the caregivers are usually left alone without the support of friends and neighbors.

Adopt A Caregiver is my unique way of giving back, all you have to do is check your neighborhood, your social clubs, church, synagogue, your doctor’s office, the Alzheimer’s caregivers message boards, and the Mayo Clinic message boards.

Then go Adopt A Caregiver.

Just send an email to the person who needs a friend, listen and come back once a week to check on your caregiver, letting him/her know you care, and will listen without judging.

Give something back.

Adopt A Caregiver.

Keep love and kisses in your life. Helene

A Tough Question

Sometimes someone asks me a question and it makes me think. What should I answer, what is the right answer I ask myself.

Well today someone made me think.

The question was, “Doesn’t it bother you to hear all these sad stories about caregivers?”

The answer jumped right out of my mouth as I answered, “No, it just makes me want ‘Adopt A Caregiver’ even more. I want to help more. I never thought about it, the words just came out.

As I think about that now, I think that answer was the correct one. It takes a long time for a person to feel safe enough to talk about their situation, and when they do, I pay attention. It’s that important to me.

I feel for every caregiver and I do want to wipe away some of their tears.One by one, word of mouth, we can do it.

November is National Caregivers Month. Lets start now. Find out who in your area is a caregiver. Find out how to get in touch with them. Tell them you understand what they are going through, because a friend of yours shared all her emotions about how it feels to be a caregiver in her book, Behind The Mask. Tell them you want to adopt them, and explain how it works. Be real, be honest, be a friend. A true friend never judges, always listens to the best of his/her ability.

Sometimes in one email you know you have made a friend. I’ve done that this week, and it feels wonderful.

My friend Jeanne and I had lunch today, something we have done since 1993, when Howard was first diagnosed. She was the only person I told in the beginning. I felt safe with her knowing the truth. We met in California, and then we both moved to Las Vegas, and we still try to meet once a week. She agreed with me that a childrens story about Alzheimer’s Disease would be something worthwhile. I’m going to try and find the time to do a story like that. Grandparents are living in the parents home, which makes the child a caregiver also. He/she needs explantions about what is happening to Granny.

I think I have enough to do, and then I always come up with more. I guess that is just the way I am. And I am just me.

Keep love and kisses in your life Helene

Reaching Out to the Community

November is National Caregivers Month. Lets start now and reach out to our community.

Adopt A Caregiver. Alzheimer’s Disease is not contagious, and the other victim is the caregiver. The one left alone at the end of the day. The days are getting darker earlier now, think about the caregiver. Be a friend, write an email, send a card, encourage them to talk, and let out their emotions. If they don’t want to talk to you, maybe they would write in a journal. I wrote in a secret journal when I was a caregiver, and believe me it saved my sanity. Because I had to keep the diagnosis a secret I poured my heart out on those pages. I published them as Behind The Mask. I am so glad I was able to take off my mask.The worry never stops, the thoughts never stop, thank God I had my journal.

I am thinking of writing a children’s book about being a caregiver. After all the child is helping and they surely don’t understand what’s going on. They are asking questions, or not asking questions. I think a book like this is necessary, don’t you? I value your opinion, let me know what you think.

I hope you never have to stand in the caregivers shoes. Adopt a Caregiver now, plant the seed and watch it grow. I’m hoping that every community will want to talk about my program, I’m hopng that every community will have an Adopt A Caregiver program. It is my new journey, please help make this vision a reality.

Keep love and kisses in your life. Helene

A Day Off

I’m taking the day off tomorrow. Just going to the knitting club for a little while in the morning. I need some catch up time. I’m way behind in answering my emails, that almost never happens to me. I have started making notes for my next book, and I need to type them up on the computer.

I want to relax. That means not doing very much. Maybe sitting in my black chair and thinking about my new book, how I will put those stories together. It too will be a memoir of the days following publishing my book, Behind The Mask, and what happened to make Adopt A Caregiver into my new book.

When someone in my community asks, “How do I start a memoir?”

I have answered this way: One way is to start with a traumatic event in your life and just let those words fly out of your head onto the paper.

Another way is to use ten year increments.  So that means you start with your early life, 1-10. Then you go on to your teen years, 11-20 and so on. You do not have to write in order. You can write an anecdote or scene and then write about something that happened ten years later. When you have finished, then you can go back to connect all the stories.

The important thing is to get it down on paper. don’t worry about punctuation, spelling, just let those words jump outside your head.

It’s also helpful and healthful to do this. Julia Cameron says “to write is to right.”

Behind The Mask helped me through a very rough seven years, worrying about when the Alzheimer’s my husband was diagnosed with would begin in earnest. There were many days I thought, ‘This is it, it’s today.” When his diagnosis was changed, and I showed him my secret journal, he said, “You need to publish this.”

After publication, I realized this book was every new caregivers story. And I wanted to help the caregivers and that’s how Adopt A Caregiver was born.

It takes both passion and dedication every day to do something about it. Word of mouth is spreading, it is working. Doors are opening, people are coming into my life to help me. I feel blessed and I vow to spend the rest of my life helping caregivers. Maybe together we can wipe away some of their tears.

One day this will be a non profit organization, one day everyone will know what Adopt A Caregiver is. And one day when you type into Google search, the words Adopt A Caregiver, they will come up first.

Thank you all for your support and help and for opening doors for me that I never  thought possible.

You are in my blessings every night.

Keep love and kisses in your life. Helene

Author Signing Today

Cheesecake and Crime is supporting local authors and today I signed my book, Behind The Mask there. Thank you for the opportunity to speak;  and your cheesecake is delicious. I met some wonderful people  today. Thank you all for coming and  listening.

If I planted a seed about my adopt a caregiver program, I’m happy. Word of mouth is potent and adopt a caregiver is so important to me. Caregivers are caregivers, 24/7, not only for Alzheimer’s Disease but all others as well. And caregivers are men, women and children. Don’t forget the kids. They too, are having a hard time and think no one understands what they are going through. Usually they are right.

If my book does nothing else, at least I know it helps everyone to understand what a new caregiver is going through. And that we do understand.

I believe in early diagnosis, and I’ve been reading that more younger people are being diagnosed with Alzheimer’s Disease. I also read there is about a 30% change since the early 2000′s if I can understand the statistics I’ve read.

It’s so important to keep the brain young. Write in a journal, it’s like writing a letter. Start with,  Dear Self and then talk and talk and write it all out. That is what I did, and yes, it did help.

Play scrabble on line, or any other game, anything that makes you think. Keep your brain young. Exercise it in any way you can.

I hope that word of mouth comes to your neighborhood, and that you will support my adopt a caregiver program. It is well worth the effort of writing an email and saying, I’m thinking about you, and I’m listening.

Keep love and kisses in your life. Helene

How Would You Adopt A Caregiver

Adopt a caregiver, such a wonderful way to give back. Takes no time to write someone an email and let him/her know you are thinking of them. Alzheimer’s Disease is not contagious, remember the caregiver is lonely and scared; think of them once in a while.

If you have any comments on how you would adopt a caregiver please add to the comment section. I will try to answer each comment as quickly as possible.

Behind The Mask, my secret journal shows  how a new caregiver feels and what they are thinking about. Now that my book is out, I’m spending my time on getting the word out so you too can adopt a caregiver and give something back.

Let me know how you are doing.

Looking forward to hearing from you.

Keep love and kisses in your life. Helene

Mission Statement

Adopt a caregiver mission statement:

The most important things in my life are my family and friends; my passion for writing, reading, and knitting; and my self respect.

My book, Behind The Mask, a caregiver’s secret journal shows the complete range of emotions a new caregiver goes through.

Alzheimer’s Disease is not contagious, yet the caregivers are usually left alone without the support of friends and neighbors, even family. This disease can last for years until the caregivers are worn out.

Adopt a caregiver is my unique way of giving back. All you have to do is check your neighborhood, your social clubs, church, synagogue, your doctor’s office, the Alzheimer’s message boards and the Mayo Clinic message boards. Then adopt a caregiver.

Just send an email or phone a person who needs a friend, listen and come back often to let her/him know you are listening, that you care, that you are thinking of them. Just being there to listen is a huge help.

Adopt a caregiver

Give something back: contribute to the well being of people who are so busy caring for others.

Keep love and kisses in your life. Helene

Behind The Mask

Behind The Mask, a caregiver’s secret journal explains how a new caregiver feels.

My book was writen when my husband Howard was diagnosed with Alzheimer’s Disease in 1993 and the Alzheimer’s Association insisted we keep it a secret, since Howard was on the Board of Directors of Toys R Us and consulting with major toy companies like Mattel.

Howard never saw my journal until long after the doctor changed the diagnosis to AAMI (age associated memory impairment) and finally took him off Aricept after seven years.

When I finally showed him my journal, he was astonished. First that I could keep it a secret, and that the words were beautiful, from my gut, heartfelt and loving.

With tears in his eyes he said, “This book should be published, it’s beautiful.”

It took me a few years to have the courage to go forward. I self published Behind The Mask this year. If you would like a copy please let me know. It’s $15.00 and I will pay the shipping and handling.

After the book was in my hands, I realized it had a purpose. Everyone should read the book, know what a caregiver is feeling and to give something back.

Alzheimer’s Disease is not contagious, and there are two victims.

adopt a caregiver

Give something back and feel good about it. It’s so easy to do.

Please feel free to add your comments and questions.

Keep love and kisses in your life. Helene