This is the first page of my book Behind The Mask.
The diagnosis is in. In the blink of an eye I become a caregiver. I am the one in charge, caring for someone who no longer can care for himself. The more he deteriorates the harder I will have to work, not only physically but to hide my emotions as well. To stuff away in a trunk all my tears, feelings, anger and hurt; not to be opened until we re separated by death. Then, and only then, will I be able to acknowledge what all caregivers know.
The death sentence for Alzheimer’s Disease is for two people. One is a prisoner of his mind, and the other is a prisoner of his soul.
I refuse to be a victim. I reject wallowing in self-pity or mournful depression. Instead I celebrate life with my family and my friends and vow to be fully alive in the moment.
Seven years later, God’s plans have changed. I am no longer climbing that steep winding mountain. The disease has either slowed down or never materialized.
The strength of the mountain is within me. I am walking on level ground with peace and happiness and love.
I can handle whatever comes next with God’s help.”
What comes next is Adopt a Caregiver. I decided this is my new mountain to climb, my new road to travel. One person can make a difference, with a little bit of help. I am starting to get that help. Thank you.
If I planted a seed, it is growing. Word of mouth is potent.
Let’s wipe away all the caregivers tears.
Keep love and kisses in your life. Helene