Fibromyalgia And Chronic Fatigue

Most people have no clue what it’s like to have Fibromyalgia and Chronic Fatigue. Went to the doctor today for my annual physical and realized I hurt all over. Any where he touched, it hurt. I am definitely in a flare up mode right now, brought on mostly by myself. The move, bending, packing, unpacking, putting thiings away, lifting heavy boxes of clothes, I thought by now it would be better. Instead it has gotten worse.

Having Fibromyalgia is like walking around all day with an all over ache, sometimes better, sometimes worse. On a bad day, it’s all I can do to get out of bed, but I do. My attitude is, it’s there, it’s always going to be there, so do what you have to do.

When I can’t do that, is when I have Chronic Fatigue. I am so tired, and brain fogged I can’t think straight, can’t concentrate, and I lose the day, or week, or month. Either you can’t sleep, or even when you do, you wake up exhausted and there isn’t a darn thing you can do about it.

I have been living this way for so many years that it’s part of me. It just is. I accept that, and I try to keep my spirits up. If I can’t do anything, I read, or take a nap, if I can. When I feel better I can get more done in one hour than I can in days. That’s just the way it is.

I’m thankful I am here. I am grateful for everything I have and can do. I’m grateful that my husband understands and gives me time and space and love.

I wish the medical profession would pay more attention to Fibromyalgia and find something to help with the pain. It is real, it hurts, it’s debilitating.

Thanks for listening.

Keep love and kisses in your life. Helene Moore

Get Organized

I need to get myself organized. I thought I was doing such a good job, and now I’m far behind again. Too many emails to answer, papers that need to be worked on and getting pushed aside every day for a week or two. Not a good idea.

Instead of beating myself up over things that weren’t getting done, I made a list of all I accomplished in a day. Well, and good, I got a lot done, but the other things are still getting pushed behind.

I need less Fibromyalgia and Chronic Fatigue days, and more good days of getting plenty of sleep and able to function as I should. Fibromyalgia takes away many days from my life. My attitude has been very good about it, but sometimes when too many bad days come in a row, I wish it were different.

Caregivers don’t have that option. Their job is 24/7 no matter how lousy they feel, or how little sleep they get at night. They function without complaining, doing the job that was thrust upon them. No choices here.

But you have choices. Look around your neighborhood, your own community and find the caregivers. Send them an email, become their friend. Put yourself in his/her shoes and if you can’t, order my book, Behind The Mask. It’s my secret journal written during the seven years I was a caregiver. Experience for yourself, the emotions and thoughts that go through a new caregiver’s mind. Behind The Mask inspired me to start my Adopt A Caregiver journey.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene Moore sent you.

Keep love and kisses in your life. Helene

I Need A Few Days

I need a few days without blogging. I will miss this, but I’m not feeling so great, Fibromyalgia and Chronic Fatigue acting up with the weather and overdoing the packing.

They are taking the art out this weekend, and we want to do as much packing as possible. we’ve done quite a lot, but it seems that there is always much more to do. We have to do it.

Please have some patience, and believe me, I will be back in a couple of days. I hope. It’s possible I will only be writing about three times a week until after our move.

In the meantime, please look around your community for caregivers. They need your support. Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Chronic Fatigue

Remember my favorite saying. You need to stand in someone’s shoes before you can comment on how they feel, or why they do what they do.

Yesterday and today were the first two good days I’ve had in two and a half weeks. And there was also that little 9 week Chronic Fatigue attack after a shot in October. My doctor says, no more shots for me.

It’s hard to explain to someone how Chronic Fatigue makes you feel. Actually, I don’t think you feel anything. You can’t think, work, do anything, which might include sleep, even though you are thoroughly exhausted!

Today I went to Anthem Authors and we are working on a Memoirs workshop  for the entire Sun City Anthem Community. I am pretty excited about it, and so are the other participants. We each have a specific section to cover, and mine is to explain different ways of starting your memoir.

Would you believe I started mine with a manilla envelope, called Reflections Of Me. It has dates on it, 1993, 1997, 2004, 2006, 2009. In that manilla envelope I stuffed little phrases like, “What Mom said when I was born. Or, 10 years old and we moved, I thought my world was coming to an end. Or, Teen years, I was yanked out of my dreams. How was I supposed to know to be careful what I wished for.”

Little phrases like that so when I actually started to write, I had some place to start. If there is any interest in this, I will share more of it when we have more work done.  Let me know. Send me your comments. I promise to answer as many as I can.

Tomorrow is a big day for us. We are having a bus from the Henderson Senior Center coming to see our collection of kissing couples. They will love it. I was also told a photographer from the local paper will be coming also. When the seniors finish here, they will go off on their bus to lunch. What a nice outing it will be for them. I can’t wait. Will tell you about it tomorrow.

Several of the seniors have supported my Adopt A Caregiver program. They are glad to be involved and they say that writing that email only takes a moment, and they know the caregivers are so grateful to have someone to talk to.

So, give the gift that lasts forever and costs nothing. Adopt A Caregiver, and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Decisions

Every day a new set of decisions to make or think about. One set of decisions is about the story I’m writing. Should it be a short story, or a book?  It’s a very emotional story, so keeping it short should make it more powerful, yet it deserves more details, why the characters are the way they are, and why they are reacting that way. Silly kinds of decisions, but decisions to make.

Fibromyalgia, Chronic Fatigue, Brain Fog, Restless Legs, and not enough sleep. No matter how much sleep I  get, I wake up exhausted, and by the time I’ve finished breakfast, I want to just sit in my lounge chair and sleep. That means every day I need to make a decision on how much I can try to do, and how to catch up on a good day. Like everything else, unless you stand in my shoes, you have no idea what this feels like. I have so many ‘lost’ days.

Caregivers feel that way too. Only they don’t have the luxury of being able to make the decision not to do too much. What a joke that would be. They have to do what they have to do.

We have to help them. We can help them. That’s why I published my secret journal, Behind The Mask, so you could learn what if feels like to stand in a new caregivers shoes.

Adopt A Caregiver was born when Behind The Mask was published. I am so grateful for this opportunity to give back. It’s such a simple plan, based on the community you live in, work in, or play in, or even go to school in. If you find out there is a caregiver in your midst, by all means, try to contact them, be their friend. Let them vent, talk, explain, and encourage them to educate you. Encourage them to journal, to email friends, to do small things, like write three things they are grateful for. Some days they won’t be able to come up with anything, but maybe other days they can come up with more than three things.

Today, I am grateful that I was able to meet my 85 year old dear friend for lunch. I am grateful that my husband wrote me a love note this morning and that he supports all my efforts in my Adopt A Caregiver program. Today, I am grateful that I am alive, the sun was shining and I have a family I can be proud of, as well as true friends.

Give the gift that lasts forever and costs nothing. Adopt A Caregive and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Caregivers, You Are Number One

Yes, you are number one and that is as it should be. You need to treat yourself gently. Give yourself a break, don’t knock yourself down. It’s hard enough, without you thinking negative thoughts. I know it’s difficult, but try to make an effort.

Today I am grateful for my Anthem Authors Meeting, we only had nine attend, but we all read something. I am grateful to know such talented, interesting and really nice people.

Today, I am grateful for my new Hanukkah gifts, I love them. A cuddly throw, a beautiful big bag, (to carry books) a sweet smelling soap, and a picture of my granddaughter and her new husband. What more can anyone ask for?

Today, I am grateful that my Chronic Fatigue has eased up to the point that I can function again.

Today, I am grateful for my husband, who did so many errands yesterday and today did paperwork all day, my family who continue to call long distance at least 5 times a week. I am very blessed!

Today, I am grateful that the winds stopped, and the sun came out. Even though my Fibromyalgia body hurts, I’m smiling.

Today, I am grateful for all the good friends I have made on line. And those who chose me because they believe in my vision for Adopt A Caregiver.

Today, I vow that I will write to all the people who have emailed me at my blog, or bought my book and I will send thank you notes to many of them. I won’t do this today, but will do it over the next few days.

What are you grateful for?

What do you want to happen?

Give the gift that lasts forever, and costs nothing. Adopt A Caregiver. Tell them your friend Helene sent you.

If you don’t know how a caregiver feels, read my book, Behind The Mask.

Keep love and kisses in your life. Helene

Snow!

Snow in Las Vegas, the airport is closed because they don’t have snow clearing equipment and the snow is still coming down.

Fibromyalgia and Chronic Fatigue makes a lousy day of it, I sat in my lounge chair most of the day. Sometimes I just can’t keep my eyes open, but I can’t sleep. Not a lot of fun, especially if everything is hurting.

Enough complaining.

I want to wish my family and my friends a Happy Hanukkah. Enjoy being with family. Hopefully we will get to California either Friday or Saturday. Whenever we can.

Adopt A Caregiver, give the gift that lasts forever, and costs nothing. Tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

I Am Thankful

Today, I read so many things; blogs, stories, and my at my writing meeting more stories and memoirs, and I wanted to say how grateful I am. Sometimes we just need to reach out to people. Different kinds of people, people we don’t normally respond to. Just smile. Just send an email. Just be a friend.

There are so many people hurting today out there in the real world, yet we all have things to be grateful for. I think everyone should write down at least three things every day they are grateful for. For me, the number is about ten things, and then I usually can go for more.

Today, I am grateful for the warm sunshine that warmed my Fibromyalgia bones. For feeling better than I have for the last eight weeks, results of shot that set off a huge Chronic Fatigue attack. I am grateful for my family and I am going to visit them a week from today, and I can’t wait. I am grateful for the little things, that I can read, write, do the things I want, within reason. It’s my life and with the support of my husband and family I am grateful I can do them.

I am especially grateful that my husband, Howard supports me in my passion for Adopt A Caregiver. I’s time consuming; emails, phone calls, making my dream of helping caregivers everywhere come true. One by one, word of mouth is working.  We can wipe away some of the caregivers tears.

I am grateful just to be here, to write on my blog, hoping someone is reading and listening.

For me, for now, that is enough. True wealth is family and friends, and leaving a legacy of love and kisses.

Keep love and kisses in your life. Helene

Adopt A Caregiver, tell them your friend Helene sent you.

Couldn't Sleep, Thinking About Blog

Silly, isn’t it? But it kept me up, and here I at at 4am. in the morning hours sitting at my computer. Wondering what I wrote last night that didn’t get saved.

I want to thank www.knittingdoc.wordpress.com for the nice mention of my book, Behind The Mask. I think you all would like to read his blogs.

Another mention I got was from www.sandwichink.com who also mentioned my book, and my Adopt A Caregiver program. Thank you so much.

I heard from a caregiver yesterday. She  said peole call her and dump on her about their illness, their medications, and so I say to you Dot..start a journal, write your memoirs, you write well. Don’t let these people continue to talk to you, tell them you have your own problems, and don’t need to hear theirs.I was reminded about a friend who had a dinner party, and she told all her guests there would be no mention of operations, doctors, illness, medications. She said, “There was no conversation.”

I’ve mentioned my Chronic Fatigue for the last eight weeks, I don’t talk about it to friends, I do mention it here in the blog sometimes because again this is something no one knows much about. This last bout came as a reaction to a shot. And I want to thank my husband. He’s been wonderful, never complains if I don’t feel like making dinner, he never complains when I sit in my lounge chair all day in my office, or when I say I don’t feel like doing anything. He’s an exceptional man, and he’s still my handsome here. Our love affair has been going on for over 56 years. I get a love note every morning. Yes, we are blessed.

So, this has turned into a bits and pieces blog.

I have a big day tomorrow. And tomorrow night I’m going to an internet workshop. I know I will be learning new things, and I need to learn more.

Keep love and kisses in your life. Helene

Adopt A Caregiver and tell them your friend Helene sent you.

To All The Caregivers I Adopted

Hello to all. I’m sorry that I’ve been too under the weather to keep in touch. I have missed talking to all of you. I am feeling better now, and will try to do better. Sometimes we bite off more than we can chew, and get too far behind to catch up.

I hope my little silly poem made you smile yesterday. It made me smile, so I put it up here. I hardly ever write poetry, and yet I have about six or seven that I think are pretty good.

It seems I am getting back to writing more and that’s good. I have neglected it for a long time.

This is the end of the eighth week of Chronic Fatigue, the result of a shot. No more shots for me.

I hope to find more time to write to you, my friends, I really do miss you all.

Adopt A Caregiver is going well. Thanks to all of you who are spreading my word out there. Word of mouth is so potent, it works so well. Only when something is very very bad, or very very good, do people talk about it. You only hear about the wonderful new restaurant that opened, or the worst place in the world. You don’t hear about the in between things. I consider Adopt A Caregiver, very very good, so please do talk about it.

Adopt A Caregiver, and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene