My World, Your World

Is my world so different that your world on this Thursday, August 22, 2013?

So, if you read my other post you know that my husband has been diagnosed with Alzheimer’s Disease for the second time in twenty years. Are there any other people you know who have gone through this? What do they have to say about it? I don’t even know what I should say about it, except that the diagnosis, or course, was wrong the first time.

The numbness is wearing off, and the feeling is returning to my mind and my body. I am meditating for my mind, but boy does my body hurt, as Fibromyalgia is alive and well. Momentum is building up; what’s next?

I’m very blessed and very lucky that I have a great support system all around me. My family lives close and remains close to us, and have already started to feel very protective towards us.

My writing group here at our senior center is going well. Although there only about 210 apartments, we have a core group of 7 who come every week. We keep it interesting and fun at the same time.

Everyone is asking me if I’m going to start another book about Howard and Alzheimer’s Disease. I might, although it’s a little early to have too much to write at this time. Although the Neurologist has already started talking about doing a study. I, for one, have so many questions about that. Have any of us gone through a study, and how did you feel about it at the beginning, and then at the end? Would love to hear from you about it.

Remember to Adopt A Caregiver. Give the gift that lasts forever, and costs nothing.

Keep love and kisses in your life.

 

Ninth Generation

Wow, I just realized that this new great grand daughter will be the ninth generation. One of my cousins once did a beginning family tree, and he sent me a copy. I looked it over and realized that if I wanted to I could go back nine generations. To me, that’s amazing. I’ve never done anything to do with family trees, but maybe someday I will. What a great background to leave for future generations.

Maybe it should go along with my memoirs. Stories and pictures of my grand parents. I knew all four of them.

There are so many things I want to write, and then I get lazy and don’t do any of it.

One thing I am doing, is getting back to exercising. I need it badly. My Fibromyalgia is bad.  My muscles are so tight. Starting again is pretty hard. I did about seven minutes today and it was hard and I was hurting. I know it will get better as I keep going, and I need to do that.

Don’t we all need some exercise? Knitting isn’t enough. I’m smiling.

Keep love and kisses in your life. Helene

My Get Up And Go Has Gone

Tired, tough day, no. Just feeling blah. Everything is a struggle. Fibromyalgia is alive and well, and it is making me feel awful. I am hurting. Everywhere.

Tomorrow is another day. I’m looking forward to waking up and feeling great.

I’m going for a much needed haircut, and out to dinner with my daughter.

At least I’m knitting. Otherwise I’d probably be even more miserable.

Talk to you tomorrow.

Keep love and kisses in your life. Helene

Give the gift that lasts forever and costs nothing. Adopt A Caregiver.

Something Different

I did something different today. I started to exercise! Not easy to push myself with Fibromyagia hurting all the time, but I figured better I should be moving my body, than sitting around all the time. In fact, I’m thinking of calling a personal trainer to make sure that I’m doing the right things the right way.

Our apartment overlooks the pool, and I hear the kids in the pool having a wonderful time. Many families are together enjoying this beautiful day.

I am waiting for the fourth generation to be born. Four generations of women! Or as my husband says, four pretty girls.. he’s still wearing his rose colored glasses and I love him for that.

I am more than half finished the baby blanket and I love the colors, grey, yellow, and white.

Tomorrow is back to errand day. I have some writing I need to get to, since I’m meeting a writing friend on Wednesday.

Support caregivers.

Keep love and kisses in your life. Helene

A Good Day

I had a good day today. The eye doctor said my cataracts aren’t ready yet, but I do need new glasses. Fibromyalgia affects my eyes also, that is a fact that not everyone is aware of. Light, noise, the immune system, inflammation, all play a huge part for anyone with Fibromyalgia.

I connected with an old writing friend today, and that made me very happy. We are going to meet next week. We have missed each other, we used to meet every week and critique each other’s writing. Maybe we can start that up again.

All in all it was an easy day today. The drops in my eyes kept me home thinking my glasses were dirty. But now, my vision is fine.  Tomorrow is my husband’s turn with the eye doctor. I don’t think he will get off as lightly as I did. We will see.

In the meantime, my grateful list grows and I hope yours does also.

Keep love and kisses in your life. Helene

Sleep

Blessed sleep, something I never, or seldom get. Fibromyalgia is the culprit, or part of it, doesn’t matter, the bottom line is my sleep is terrible. Very seldom do I get a full nights sleep. Some nights I get no sleep at all, and all this with the help of a sleeping pill.

I’ve gotten used to it, I don’t like it, my husband doesn’t like it, but hey, it is what it is. I’m grateful when I get 4-6 hours sleep, and truthfully, I have to nap most days. It’s funny, on the days I do nap, I sleep better at night. Most of you are thinking, don’t nap, you’ll sleep better at night. That doesn’t work for me. Believe me, I’ve tried it.

But I’m grateful when I sleep, and when I can’t I accept it. I forgive myself for not doing everything I think I should be doing in a day. I forgive myself when I’m not up to par.

Imagine how the caregiver feels. it’s so hard to stand in someone else’s shoes. Another reason I published my secret journal, Behind The Mask. Being a  caregiver is hard enough, it’s even harder when you have to keep it a secret as I did.

I hope my story inspires others to Adopt A Caregiver. Every caregiver needs a friend, someone who won’t judge them, lets them vent, talk, get it out, someone who encourages the caregiver to forgive themselves, to journal, to listen to music and to just be there.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Fibromyalgia And Chronic Fatigue

Most people have no clue what it’s like to have Fibromyalgia and Chronic Fatigue. Went to the doctor today for my annual physical and realized I hurt all over. Any where he touched, it hurt. I am definitely in a flare up mode right now, brought on mostly by myself. The move, bending, packing, unpacking, putting thiings away, lifting heavy boxes of clothes, I thought by now it would be better. Instead it has gotten worse.

Having Fibromyalgia is like walking around all day with an all over ache, sometimes better, sometimes worse. On a bad day, it’s all I can do to get out of bed, but I do. My attitude is, it’s there, it’s always going to be there, so do what you have to do.

When I can’t do that, is when I have Chronic Fatigue. I am so tired, and brain fogged I can’t think straight, can’t concentrate, and I lose the day, or week, or month. Either you can’t sleep, or even when you do, you wake up exhausted and there isn’t a darn thing you can do about it.

I have been living this way for so many years that it’s part of me. It just is. I accept that, and I try to keep my spirits up. If I can’t do anything, I read, or take a nap, if I can. When I feel better I can get more done in one hour than I can in days. That’s just the way it is.

I’m thankful I am here. I am grateful for everything I have and can do. I’m grateful that my husband understands and gives me time and space and love.

I wish the medical profession would pay more attention to Fibromyalgia and find something to help with the pain. It is real, it hurts, it’s debilitating.

Thanks for listening.

Keep love and kisses in your life. Helene Moore

Get Organized

I need to get myself organized. I thought I was doing such a good job, and now I’m far behind again. Too many emails to answer, papers that need to be worked on and getting pushed aside every day for a week or two. Not a good idea.

Instead of beating myself up over things that weren’t getting done, I made a list of all I accomplished in a day. Well, and good, I got a lot done, but the other things are still getting pushed behind.

I need less Fibromyalgia and Chronic Fatigue days, and more good days of getting plenty of sleep and able to function as I should. Fibromyalgia takes away many days from my life. My attitude has been very good about it, but sometimes when too many bad days come in a row, I wish it were different.

Caregivers don’t have that option. Their job is 24/7 no matter how lousy they feel, or how little sleep they get at night. They function without complaining, doing the job that was thrust upon them. No choices here.

But you have choices. Look around your neighborhood, your own community and find the caregivers. Send them an email, become their friend. Put yourself in his/her shoes and if you can’t, order my book, Behind The Mask. It’s my secret journal written during the seven years I was a caregiver. Experience for yourself, the emotions and thoughts that go through a new caregiver’s mind. Behind The Mask inspired me to start my Adopt A Caregiver journey.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene Moore sent you.

Keep love and kisses in your life. Helene

I Need A Few Days

I need a few days without blogging. I will miss this, but I’m not feeling so great, Fibromyalgia and Chronic Fatigue acting up with the weather and overdoing the packing.

They are taking the art out this weekend, and we want to do as much packing as possible. we’ve done quite a lot, but it seems that there is always much more to do. We have to do it.

Please have some patience, and believe me, I will be back in a couple of days. I hope. It’s possible I will only be writing about three times a week until after our move.

In the meantime, please look around your community for caregivers. They need your support. Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Yesterday's Post

Sorry guys, I goofed. I had no idea when I copied and pasted my writing from Word that I would get all that gobbly-gook…I’m very sorry, and it won’t happen again.

Some hard things got taken care of today. The Salvation Army is coming tomorrow to pick up a load of things that we can’t use anymore. I finally got rid of some clothes, things I’ll never wear; things that don’t fit. So they are gone too. and that is a good thing. I still have the rest of my closet to do..maybe a little bit tomorrow.

But more importantly I still have the collection to take care of. Moving is such fun…

The best part of my day came late this afternoon when I decided I had done enough and my Fibromyalgia said quit now. So I did.

I found a whole briefcase full of letters from all my children when they were in camp, when I was working and they wrote me letters, and letters (and report cards that were my hubands) from my husband when he was traveling in Japan and Hong Kong. That was such fun and brought back so many memories. I’m glad I’m a pack rat. Now I can give those letters to my grandchildren and they can read about their parents when they were youngstes.!

Tomorrow is AA day. (Anthem Authors) and I will be acting as President, since our President has an appointment. I had four years of being President. (I founded Anthem Authors in February, 2000) I love this group. Go to www.anthemauthors.com and read some of our stories. Our website is just beginning, so bear with us as we grow and more stories go online

Tomorrow I will share something I received today from a friend, and I am determined to make Adopt A Caregiver a household word. I don’t care how long it takes, to me it’s more important all the time.

Give the gift that lasts forever and costs nothing. Adopt A Caregiver and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene