Fibromyalgia Night

Sorry guys, this is a Fibromyalgia night, can’t think, hurting all over and just feeling overall miserable.

However, I still wrote a few of my adopted caregivers an email.

So, give the gift that lasts forever and costs nothing.

Adopt A Caregiver and tell them your friend Helene sent you.

Keep love and kisses in your life Helene

Decisions

Every day a new set of decisions to make or think about. One set of decisions is about the story I’m writing. Should it be a short story, or a book?  It’s a very emotional story, so keeping it short should make it more powerful, yet it deserves more details, why the characters are the way they are, and why they are reacting that way. Silly kinds of decisions, but decisions to make.

Fibromyalgia, Chronic Fatigue, Brain Fog, Restless Legs, and not enough sleep. No matter how much sleep I  get, I wake up exhausted, and by the time I’ve finished breakfast, I want to just sit in my lounge chair and sleep. That means every day I need to make a decision on how much I can try to do, and how to catch up on a good day. Like everything else, unless you stand in my shoes, you have no idea what this feels like. I have so many ‘lost’ days.

Caregivers feel that way too. Only they don’t have the luxury of being able to make the decision not to do too much. What a joke that would be. They have to do what they have to do.

We have to help them. We can help them. That’s why I published my secret journal, Behind The Mask, so you could learn what if feels like to stand in a new caregivers shoes.

Adopt A Caregiver was born when Behind The Mask was published. I am so grateful for this opportunity to give back. It’s such a simple plan, based on the community you live in, work in, or play in, or even go to school in. If you find out there is a caregiver in your midst, by all means, try to contact them, be their friend. Let them vent, talk, explain, and encourage them to educate you. Encourage them to journal, to email friends, to do small things, like write three things they are grateful for. Some days they won’t be able to come up with anything, but maybe other days they can come up with more than three things.

Today, I am grateful that I was able to meet my 85 year old dear friend for lunch. I am grateful that my husband wrote me a love note this morning and that he supports all my efforts in my Adopt A Caregiver program. Today, I am grateful that I am alive, the sun was shining and I have a family I can be proud of, as well as true friends.

Give the gift that lasts forever and costs nothing. Adopt A Caregive and tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

Caregivers, You Are Number One

Yes, you are number one and that is as it should be. You need to treat yourself gently. Give yourself a break, don’t knock yourself down. It’s hard enough, without you thinking negative thoughts. I know it’s difficult, but try to make an effort.

Today I am grateful for my Anthem Authors Meeting, we only had nine attend, but we all read something. I am grateful to know such talented, interesting and really nice people.

Today, I am grateful for my new Hanukkah gifts, I love them. A cuddly throw, a beautiful big bag, (to carry books) a sweet smelling soap, and a picture of my granddaughter and her new husband. What more can anyone ask for?

Today, I am grateful that my Chronic Fatigue has eased up to the point that I can function again.

Today, I am grateful for my husband, who did so many errands yesterday and today did paperwork all day, my family who continue to call long distance at least 5 times a week. I am very blessed!

Today, I am grateful that the winds stopped, and the sun came out. Even though my Fibromyalgia body hurts, I’m smiling.

Today, I am grateful for all the good friends I have made on line. And those who chose me because they believe in my vision for Adopt A Caregiver.

Today, I vow that I will write to all the people who have emailed me at my blog, or bought my book and I will send thank you notes to many of them. I won’t do this today, but will do it over the next few days.

What are you grateful for?

What do you want to happen?

Give the gift that lasts forever, and costs nothing. Adopt A Caregiver. Tell them your friend Helene sent you.

If you don’t know how a caregiver feels, read my book, Behind The Mask.

Keep love and kisses in your life. Helene

Snow!

Snow in Las Vegas, the airport is closed because they don’t have snow clearing equipment and the snow is still coming down.

Fibromyalgia and Chronic Fatigue makes a lousy day of it, I sat in my lounge chair most of the day. Sometimes I just can’t keep my eyes open, but I can’t sleep. Not a lot of fun, especially if everything is hurting.

Enough complaining.

I want to wish my family and my friends a Happy Hanukkah. Enjoy being with family. Hopefully we will get to California either Friday or Saturday. Whenever we can.

Adopt A Caregiver, give the gift that lasts forever, and costs nothing. Tell them your friend Helene sent you.

Keep love and kisses in your life. Helene

I Am Thankful

Today, I read so many things; blogs, stories, and my at my writing meeting more stories and memoirs, and I wanted to say how grateful I am. Sometimes we just need to reach out to people. Different kinds of people, people we don’t normally respond to. Just smile. Just send an email. Just be a friend.

There are so many people hurting today out there in the real world, yet we all have things to be grateful for. I think everyone should write down at least three things every day they are grateful for. For me, the number is about ten things, and then I usually can go for more.

Today, I am grateful for the warm sunshine that warmed my Fibromyalgia bones. For feeling better than I have for the last eight weeks, results of shot that set off a huge Chronic Fatigue attack. I am grateful for my family and I am going to visit them a week from today, and I can’t wait. I am grateful for the little things, that I can read, write, do the things I want, within reason. It’s my life and with the support of my husband and family I am grateful I can do them.

I am especially grateful that my husband, Howard supports me in my passion for Adopt A Caregiver. I’s time consuming; emails, phone calls, making my dream of helping caregivers everywhere come true. One by one, word of mouth is working.  We can wipe away some of the caregivers tears.

I am grateful just to be here, to write on my blog, hoping someone is reading and listening.

For me, for now, that is enough. True wealth is family and friends, and leaving a legacy of love and kisses.

Keep love and kisses in your life. Helene

Adopt A Caregiver, tell them your friend Helene sent you.

Today's Significant Event

I received the nicest compliment today. One of my friends adopted a caregiver. She stopped to tell me that they were going to lunch next week. She invited me, but I had to decline. I would love to go with them, but my week is filled. I promised the next time I would go. How nice to be stopped and told that what you are doing is a wonderful thing. Giving back to people who really need a friend. Her eyes were sparkling as she talked. Thank you so much.

Also listened to a speaker today who is a writing coach, and editor. She’s a warm wonderful person, who likes to give back in her profession. She is someone who wrote a beautiful blurb in my book, Behind The Mask. Thank you Dr. Mary.

I’ve had some bad days lately, lots of Chronic Fatigue, and Fibromyalgia; a reaction from a shot has messed up my immune system. Chronic Fatigue is unrelenting. I am exhausted all the time.  Sometimes I can hardly keep my eyes open, or my mind functioning. It’s hard to think, and hard to write.

But better days are coming, and it’s one day at a time anyway. Tomorrow my friend is giving a luncheon, and I’m looking forward to seeing her. She is one terrific lady.

Keep love and kisses in your life. Helene

Happy and Healthy New Year

A very Happy and Healthy New Year to all my friends who are Jewish. Tonight begins our New Year.

I wish for a better year, a healthier year, a year for new doors opening on Adopt A Caregiver.

Tomorrow we are seeing our lawyer and setting up a Non Profit, and hopefully the U.S. Patent office will contact me soon on my trade mark for Adopt A Caregiver.

Tomorrow afternoon, I am getting my blog and website updated. Don’t know if you will be able to notice the difference but I am sure I will. Can’t wait.

A terrible Fibromyalgia and Chronic Fatigue week for me. Haven’t had it this bad in years. Maybe a lot of stress and the humidity is catching up with me.

Oh well, what do I say, tomorrow is a new day. And the sun will shine here in Las Vegas. I love the sunlight, but am getting tired of the 90 plus degrees. Can’t wait for some cooler weather.

Everyone was gracious yesterday during my talk, everyone listened and I think one by one they will say something about Adopt A Caregiver. I hope.

Thursday I am giving another talk. Will tell you about that on Friday.

I’ve got a lot of catching up to do.

This was a mish mosh of bits and pieces of my life.

Keep love and kisses in your life. Helene

Thank you Lisa for your kind words.

Remember

Remember the Alzheimer’s stamp is coming out soon. And remember to wear purple on Sunday, the 21st. I know I will be wearing purple and holding my book, Behind The Mask, with it’s purple color.

Remember that you are blessed, and each day is a gift.

We lose people we love, but we remember them with our love and smiles.

Remember to smile when you are feeling lousy as I am today with Fibromyalgia and Chronic Fatigue. A bad day, but tomorrow is another day.

Remember to take care of yourself. And please think about my Adopt A Caregiver program.

This is my new journey, and it should start within every community. We all have friends, or neighbors who are caregivers. Please help them, remember them with kindness. Email them, tell them you care.

Keep love and kisses in your life. Helene

Bits And Pieces of Life

Small bits and pieces make up a life, or a day. It’s what you do, what you dream, what you don’t do.

The stitches came out of my finger yesterday, and now I can type on the computer. Felt good to do simple things, like wash my two hands. Couldn’t do that for two weeks. A strange feeling. Tomorrow I’m going to the knitting club at our center, but am not sure I can knit. But I will try.

A blog reader sent me a beautiful email; about how lonely and difficult being a caregiver is. She also said although the times were difficult, she would not change the lessons learned from this experience. Neither will I.

It taught me to be compassionate for those less fortunate than we were and how to live in the moment of every day. To be grateful for the sunshine, the laughter, the flowers and trees, and most of all for our family who were always there when we needed them. Love and kisses and strength and faith got us through those awful times.

I wish someone would ask me, “What do you see for the future?”

My answer would have to be, “I wish someday there would be no need for caregivers. I hope that people all over would listen to their hearts and give something back. I wish everyone would adopt a caregiver.” That would be my answer.

Fibromyalgia is alive and well in my body today, yet I felt the need to write.

This is the bits and pieces of my life today; with random thoughts, wishes, and dreams.

Keep love and kisses in your life. Helene

Write and let me know your bits and pieces.

Read Behind The Mask and know what it feels like to be a caregiver.