Fibromyalgia, Chronic Fatigue and Me

It’s in the 90’s here in Las Vegas, but my body is telling me that winter is here. That’s what Fibromyalgia and Chronic Fatigue feels like. Everything hurts! Parts of my body are already feeling the cold, inside.

Hard to concentrate, hard to write, but attitude is so important, I keep telling myself, tomorrow is another day. I’m going to the knitting club and relax for awhile, then do some errands, and come home to rest.

After my rest, I will read the rest of the old emails I wrote to my dear friend in North Carolina during the time my husband was diagnosed with Alzheimer’s Disease. We have kept in touch these many years. Those letters still brought tears to my eyes, both for her and for myself.I remind myself, how lucky we are and how blessed.

I will Adopt A Caregiver whenever I have time, and I hope you all will too. The caregivers need our support. We need to support caregivers.

Remember one by one, by word of mouth we can all spread the word. The seed is now planted and we can watch it spread.

My secret journal, now the book, Behind The Mask will explain how a new caregiver feels. Understand, stand in their shoes, and then go out and Adopt A Caregiver.

For those of you starting a memoir, it’s easy to just start it as a letter. Dear —, or Dear Self, try it, it works.

Keep love and kisses in your life. Helene

Calling All Caregivers

I am going to the knitting club this morning, one of my favorite ways to relax.

This weekend I am starting my new book adopt a caregiver. This will contain my stories when I was a caregiver, as well as stories told to me as I go around speaking to groups. I am constantly amazed at how everyone is wiling to open up to me and tell me their story. I think that is because they have never talked about it to anyone. Caregivers always keep it inside, not wanting to burden anyone.

My idea now is to have caregiver groups contact me, or at least the facilitator, the leader of the group. I have people asking me who they can adopt. I’m so happy ot hear they are willing to spend some time to adopt a caregiver. This is now my mission in life. Wanting to help the caregivers, who are so admirable in what they do. Most people do not have a clue how hard and lonely this job is.

Please comment, ask questions, your input is important.

Behind the Mask is my secret journal, now published so everyone can read  how a new caregiver feels. My thoughts and emotions are laid bare. This is the framework for adopt a caregiver.

Thank you for reading and

Keep love and kisses in your life. Helene

Inspiration To Adopt A Caregiver

Behind The Mask is receiving many more interesting comments. Like, “Why didn’t you ever tell me you felt that way. I did not know.”

Truth is Alzheimer’s caregivers show a lot of courage facing this disease. They don’t want to burden anyone else, while they are overburdened themselves. I wish I could tell caregivers to write in a journal, I do think it helped me get through this very painful period of my life.  Behind The Mask is that secret journal, and I poured all my emotions into it. I felt the darkness like a cave, and I couldn’t claw my way out to the top where the light shined through. It was a devastating time for both of us.

While my heart cries for caregivers, I also salute their courage and their ability to smile for the world to see.  When you watch someone you love who looks the same, walks the same, but isn’t the same, you just go through the motions of life.

If you adopt a caregiver, you will be giving something back, and doing something wonderful for the caregiver. You listen, you don’t judge, you help this person smile when they don’t have anything to smile about. My four adopted caregivers are very vocal about how much they appreciate what I am doing. And it makes me feel like I am doing something for them.

One on one, we can make a difference, with a little help.

I hope I’ve inspired you to adopt a caregiver;  your life will never be the same.

Keep love and kisses in your life. Helene

Behind The Mask is available, signed, from my website.


My secret journal, Behind The Mask

Behind The Mask is the story of my caregiving life for the seven years my husband’s Alzheimer’s was kept a secret. This very personal, heartfelt journal contains the hopes and fears of my secret.

When my husband Howard finally read the journal years later, he said it needed to be published.

It wasn’t until I did self publish Behind The Mask that I realized the book had a purpose. It was to show what the caregiver is feeling and to alert everyone that Alzheimer’s is not contagious, and the caregiver is eventually abandoned.

I would like to change that. I would like everyone to adopt a caregiver.

It’s really easy. As simple as listening to see if anyone in your own neighborhood is a caregiver, then email or call, and stay that person’s friend throughout her entire ordeal.

If you have easy ways to adopt a caregiver, be sure to write me and we can share ideas. If you are a caregiver, please write and we can share ideas also.

I’ve been busy knitting for underprivileged children, and knitting a scarf for breast cancer.

I’ll be with my family in California from Friday, tomorrow until Tuesday of next week.

Talk to you when I get home.

Keep love and kisses in your life. Helene