Time Flies

It’s been such a long time since I have written. So let’s see what has been happening. First of all, I’m good. I attribute a lot of that to my Meditating every day. When I don’t do it, I miss it.

Also keeping up better with everyday paper work, except for my blog. What does that say about me? I wonder?

My writing group is still going great. We did free writing today, and it went so well, we are going to do it every day for the month of April. Will be very interesting to see what pops up.

Howard is doing so well that he failed participating in the new drug trial for Alzheimer’s Disease for mild to moderate dementia.. He failed because he is
‘too highly functional’ isn’t that wonderful news. It was for us. Especially since I wasn’t so happy with some of the possible side effects.

I also participate in computer classes, Meditation classes and Mah Jongg. At almost 83, that is enough.

For those of you who have Sjogren’s Disease, please note that you must take care of your dry eyes. My eye doctor informed me today that when my eyelid closes on my left eye, it is scratching my cornea. I really didn’t want to hear that. I have to go back in a month. In the meantime I need to use my Bio Tears 4 times a day (4 pills) and use my Restasis every day. Plus eye drops. Often! Any of you have any more ideas for me? Feel free to comment. Would love to hear from you.

Keep love and kisses in your life.
Remember that Alzheimer’s Disease is not contagious!

Happy New Year

9/4/13  A very Happy and Healthy New year to all my Jewish friends. It is a wonderful holiday full of tradition and family, and of course food.

I gave my writing group a writing assignment this week: Write about the meaning of your life. Just a stream of consciousness, could be an outline of your life, yesterday, today or tomorrow, your legacy, one moment in time, any age and so on. Just let those words flow. Do this for one time, or several times during the week. Next week, we will do it again for one day, and so on until the end of the month. At which time, we will all reread what we have written during the month, and either discuss it or not, and possibly continue this till the end of the year.. Should be an interesting project. I suggest you try it out yourself. Consider leaving a comment about how it’s working out. I will update the outcome at the beginning of next month and let you know how we made out with this assignment.

If I have learned anything this year, it’s take one beautiful day at a time, even one hour at a time. Life is short, and you never know when it’s the end, so enjoy every minute. Keep people around you that you are comfortable with, who lift you up, and not put you down. Get those negative people away from you.

I’ve learned so much about myself and my writing this year. I finally feel like a writer. My writing group here at Coventry Court is wonderful and we have great times learning together. Also, I took an online writing course, Story Cartel, which boosted me up and taught me so many thing. In fact it was so much to learn that I might have to take this course again. I highly recommend it.

Another thing that is helping me personally and in my writing  is Meditation. I try to do it everyday. Just about every time I do this practice, I find my muse (writing) is hovering about giving me insight into something I’m trying to write. Or, I just fall asleep  and that is okay too.

I’m trying to follow a healthier lifestyle. Eating better, trying to walk a little bit and not spending all my time trying to catch up. I know me, and I will never catch up, it’s who I am. I say I am slowing down, and then I buy 3 books in a row, or download several books to review. I am just me.

I’m determined to start a new book about me and how Alzheimer’s Disease is affecting my husband. This time the book will be more of a tribute to him.

Last time Behind The Mask was all about me and my feelings because it had to be kept a secret, that was twenty years ago when he got his first diagnosis of Alzheimer’s Disease. That was really hard. And of course, it never happened. This time, it’s a fact, but we understand and we are ready to do whatever is necessary. I will learn when I have to, to live in his reality.

Keep love and kisses in your life.

My World, Your World

Is my world so different that your world on this Thursday, August 22, 2013?

So, if you read my other post you know that my husband has been diagnosed with Alzheimer’s Disease for the second time in twenty years. Are there any other people you know who have gone through this? What do they have to say about it? I don’t even know what I should say about it, except that the diagnosis, or course, was wrong the first time.

The numbness is wearing off, and the feeling is returning to my mind and my body. I am meditating for my mind, but boy does my body hurt, as Fibromyalgia is alive and well. Momentum is building up; what’s next?

I’m very blessed and very lucky that I have a great support system all around me. My family lives close and remains close to us, and have already started to feel very protective towards us.

My writing group here at our senior center is going well. Although there only about 210 apartments, we have a core group of 7 who come every week. We keep it interesting and fun at the same time.

Everyone is asking me if I’m going to start another book about Howard and Alzheimer’s Disease. I might, although it’s a little early to have too much to write at this time. Although the Neurologist has already started talking about doing a study. I, for one, have so many questions about that. Have any of us gone through a study, and how did you feel about it at the beginning, and then at the end? Would love to hear from you about it.

Remember to Adopt A Caregiver. Give the gift that lasts forever, and costs nothing.

Keep love and kisses in your life.

 

Alzheimer’s Disease AGAIN

Can you believe this one? My husband was diagnosed with Alzheimer’s Disease 20 years ago. Obviously whatever was going on with him then never got much worse. But we had to keep it a secret because he was still working. As the years went by, and it was obvious it wasn’t A.D. the doctors would not take him off the A. D. medication. So from 1993 to 2000 he suffered from terrible stomach pain, that came and went for years.

Transfer to today, August 16th, 2013. We learned two days ago, by a second opinion, that this time he did have early, mild Alzheimer’s Disease. Even the Neurologist smiled and said, “Funky case, never saw anything like this one before.”

Anyone out there with this same experience?

The last time I kept everything inside, and published my journal from those years, Behind The Mask…..I thought it was so good to rip off that Mask.

Now that I can talk about it, I haven’t shed a tear, just feel overwhelmed. We even went out and bought cemetary plots……how’s that for jumping the gun?

It’s hard enough to hear this once, but to get slammed in the stomach twice..I think you get the picture.

Right now life is crazy. Making plans, doing things in fast motion, trying to slow down, but doing more than ever. At 82 I find myself doing an online writing course, which I am loving, but it takes up a lot of time.

Thank goodness for a close and loving family, almost all of whom live within a 30 minute car ride, some are very close, like a half mile and one mile… We are blessed and thankful for that. We do have a built in support group.

Every day I try to find things to be grateful for, and to find a little bit of beauty in my life. I meditate also, which helps and I read and read, and read. My escape from the reality of the world.

Next time I’ll talk about my writing, my writing group, and some books that I highly recommend.

Keep love and kisses in your life. And remember to Adopt A Caregiver. Give the gift that keeps on giving, without costing you anything.